Monday, March 4, 2013

30.



"My reign is not yet over" (these words were legible in one of these inscriptions); "you live, and my power is complete...Come on, my enemy; we have yet to wrestle for our lives; but many hard and miserable hours must you endure until that period shall arrive." 

-Mary Shelley, Frankenstein; or, The Modern Prometheus

 30 years. For 30 years I have been both the pursuer and the pursued. Chasing highs, chasing lows. Wrestling for my life with the inhumane beast that is type 1 diabetes. I have spent three decades pinning it down by the neck, grabbing its slippery tail as it tries to release itself from my grasp. I have spent nights terrified of its tapping, tapping at my parlor door - the low blood sugar alarm of a meter, the sweaty, half-blind stumblings (or crawlings) to the kitchen for juice. All for a pancreas blasted of life and stitched back together with crude Victorian instruments - the vial and syringe - wrapped in scar tissue and seeming hatred for its host.

And yet. I am still here. Still sighted. Still free of that which stalks from the shadows. For now. For who knows when the ghastly creature, the Monster, shall emerge from the mist to have his final revenge?

"But it is true that I am a wretch. I have murdered the lovely and the helpless; I have strangled the innocent as they slept, and grasped to death his throat who never injured me or any other living thing. I have devoted my creator, the select specimen of all that is worthy of love and admiration among men, to misery; I have pursued him even to that irremediable ruin."

30 years. Would that some modern Prometheus soon steals the fire of a cure and carry it to us, the children with diabetes now grown. So that another 30 years do not pass lashed to the rock, the eagle of fear daily gnawing at my insides.

Prometheus depicted in a sculpture by Nicolas-S├ębastien Adam, 1762 (Louvre)

http://www.literature.org/authors/shelley-mary/frankenstein/chapter-24.html

http://en.wikipedia.org/wiki/Prometheus

6 comments:

Scott K. Johnson said...

Beautifully powerful post, Kathy. Thank you.

Araby62 (a.k.a. Kathy) said...

Thank you Scott :)

Karen said...

What an amazing post, Kathy. You have said it all better than I ever dreamed it could be said. Thank you!!

Araby62 (a.k.a. Kathy) said...

I'm humbled & flattered Karen - thank you :)

Anonymous said...

I couldn't figure out how to email this to you, I saw your blog and wanted to share with you. Because T2 has inadvertently assumed the name Diabetes, there's so much confusion. It's not a opinion of, "I don't want to be associated with them" for most of us T1's, it's a matter of "I'd like to end the confusion and fighting between the types". Confusion equals conflict. Nearly 2,000 signatures in under 2 weeks - We are moms of Type 1 children who have filed a petition to revise the names of both Type 1 and Type 2 Diabetes to more accurately reflect the nature of each disease. We tried to do this in a way that benefits both the Type 1 and Type 2 communities. We sincerely hope that we have accomplished our goal to make this petition benefit all of us. Please click on the link below to view our petition on change.org and please read it in its entirety before passing any judgement.
We respect your opinion if you choose not to support the petition. We apologize if we have offended anyone in any way with the language or purpose expressed in our petition. We truly tried to look at our petition from the position of all within the diabetes community and it was certainly not our intent to dismiss anyone's feelings or needs. We thank supporters, and non-supporter alike, in advance for taking the time to read and consider our petition.
Thank you,
Jeanette Collier & Jamie Perez

http://www.change.org/petitions/revise-names-of-type-1-2-diabetes-to-reflect-the-nature-of-each-disease

Araby62 (a.k.a. Kathy) said...

Happy to post your comment but I'm no leader in the DOC - linking your petition to let readers decide on their own. Thanks for reading!